Marco’s first encounter with the disease was through meeting Fabio – the 4 year old child of one of Marco’s friends. People with Usher’s Syndrome are born with a hearing impairment and later become completely deaf and blind. There are only 1,000 people in the Netherlands with Usher’s Syndrome. In order to finance scientific research, Marco drove a team of talented people to create this book, the benefits of which are entirely beneficial to the Usher’s Syndrome Foundation. The book was made together with the Total Design team & launched at De Zwijger, Amsterdam on 31st August 2017.